Talent For Talen
Fire Marshal BIll, Dr. Cirkustien, The JackKnife Barbers
400 W. Tremont Ave.
Charlotte, NC, 28203
Doors 7:00 PM / Show 8:00 PM
This event is all ages
Talent For Talen
This show is a benefit for little Talen Campbell. All proceeds from this show will be donated to his family to assist in medical costs and medical bills.
Read about Talen below, and come out to show some love and enjoy 4 stellar local acts!
Talen Michael Campbell, born February 6, 2006, was diagnosed in March 2012 with Duchenne muscular dystrophy.
Muscular dystrophy is a group of inherited neuromuscular disorders characterized by progressive muscular degeneration. Duchenne muscular dystrophy, or DMD, is the most common, and most serious form.
DMD affects about 1 in 3500 boys born worldwide, with the current population of affected boys in the United States hovering around 45,000. Early signs include difficulty with motor skills causing an awkward gait and frequent falls, pseudohypertrophy of the calf muscles, and contraction of the achilles and hamstrings. Children with Duchenne typically lose the ability to walk around 10-12 years of age, followed by progressive loss of the rest of their motor functions. Most are on a ventilator by the age of 20, and while average life expectancy has been increasing due to improvement in care, right now boys with DMD rarely live past the age of 25.
This site started out of a need to sort and categorize information for my own benefit, as a parent of a child with DMD. There is a massive amount of information to digest, and I was running out of space in my Dropbox. I've since added some information about Talen and the rest of our family, including some pictures and info on efforts our friends put in to send Talen to Disney.
For those who aren't into reading scientific journals and medical research, I've started to put together a quick guide to DMD, including a couple of videos under ABOUT DMD on the site menu.
It isn't completely hopeless, though. Resources have been committed to finding a cure, or barring that, a means to ameliorate the symptoms of DMD sufficiently to give the kids a reasonably normal life. Several new therapeutic options are currently in the pipeline that could drastically alter the course of the disease in Talen's lifetime.
Fire Marshal BIll
We make musical babies on the weekly.
the 2 Live Crew of Polka Jazz Blues.
a fusion of reggae, jazz, punk, and kitchen sink.
The JackKnife Barbers
It's like Emerson, Lake and Palmer getting into a pub fight with The Who while The Moody Blues shoot vodka at the bar.
With an inner fire fueled largely by ethanol and a passion for performance, Matt Stache and The JackKnife Barbers have blazed the trail into a new genre of keyboard-driven progressive and excessive garage rock... garage prog.